UPDATE: NOVEMBER 2010
Overcomes fear and starts walking on his own.
Continues to learn how to communicate.
Continues to stay healthy and strong. No hospital addmission for sickness since November 2007! (fear for momma remains)
Will be off feeding tube completely
PDA closer was success
Testis were found and brought down.
Continues to eat more and more by mouth and feeding himself some:)
Alex was born an 8lb 1oz baby boy. He had trouble breathing from the get go, and suffered from pulmonary hypertension. He was in the NICU for 6 weeks, and there he was diagnosed with Rubinstein Taybi Syndrome. This little boy who doesn't speak has taught me more in the last year than I have learned in my life time. I'm so excited to be his momma.